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What's New Inspiration Our Story About For Grace About WIP
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Media Kit
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“I hope that my story will bring attention to the plight of women of color in pain, and other medically underserved women.”
Intro Letter

Various studies have found that women are more likely to suffer from chronic pain diseases, suffer more severe pain and tolerate pain less well than men.  Despite a growing body of information about chronic pain, however, many women still report that doctors often dismiss their pain as being “hormonal” or “all in their head.”  Too often, the recommended treatment is sedatives and referrals for psychiatric counseling.  In short, women hurt more and are helped less.

It is estimated that more than 60 million U.S. women are challenged daily with persistent pain.  Without proper medical management, this pain often leads to a lifetime of physical and emotional distress, disability, financial ruin, social isolation and depression.  Suicide is common among women with severe pain. 

For Grace is dedicated to addressing this disturbing trend by empowering women to become better advocates for their pain care, informing the public and media about the gender disparity in pain treatment and educating policy makers about chronic pain as a major national health crisis.

Our founder and spokesperson, Cynthia Toussaint, was left bedridden for a decade because she was told by her doctors her pain was not real.  She has survived three challenging diseases for 32 years in order to tell her story for those who do not have a voice. 

Also, For Grace has assembled a Women in Pain Action Team, comprised of pain experts who can speak about the gender disparity issue from a personal, clinical and research perspective.

 

Fact Sheet
  • Chronic pain is pain that lasts for months or years as a result of a chronic condition or lingers more than the usual recovery period for an illness. This includes common medical problems such as arthritis and migraines as well as conditions such as Complex Regional Pain Syndrome, fibromyalgia, Interstitial Cystitis and Lupus.
  • Chronic pain causes sufferers to endure many hardships including loss of work or forced disability leave from work, loss of mobility and independence, strain on personal relationships and psychological stress.
  • According to the Institute of Medicine, more than 100 million people in the United States suffer from chronic pain. Each year, Americans lose $600+ billion due to reduced productivity, sick time and medical costs associated with chronic pain (Institute of Medicine, “Relieving Pain in America: A Blueprint for Transforming Prevention, Care, Education, and Research”, June 2011)
  • Chronic pain plagues people from all walks of life; however, women are statistically most prone to illnesses involving chronic pain. Despite the multitudes who suffer, women face a gender bias in pain treatment and management, remaining conspicuously under-diagnosed.
  • According to a 2001 landmark study published in the Journal of Law, Medicine, and Ethics, titled “The Girl Who Cried Pain: A Bias Against Women in the Treatment of Their Pain”, women’s pain reports are taken less seriously than men’s and they receive less aggressive treatment for their pain.
Background
Articles & Other Media
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The Discovery Channel—November 2013
Pain Matters
(For Grace partnered with, consulted on and is featured in this documentary)

MariaShriver.com—March 2013
Overcoming Suffering, Battling for Grace

ABC World News with Diane Sawyer—February 2012
Women In Pain
(For Grace inspired, consulted and interviewed for this segment)

ABCNews.com—June 2011
Nation Fails Millions of Americans in Pain

LifeScript.com—April 2011
How to Ease Fibromyalgia Pain When Traveling

MORE Magazine—April 2011
“The Male-Female Pain Gap”
(For Grace generated, consulted and interviewed for this article)

AOL.com—August 2010
Opinion: Fail First? Is This Any Way to Practice Medicine?”

Maria Shriver’s The Women’s Conference Website—January 2010
How My Illness Brought Me Grace” by Cynthia Toussaint

ABC News—April 2009
“Patients Irate With ‘Fail First’ Policy” 
(For Grace pitched, consulted and interviewed for this story)

AARP The Magazine—January & February 2009
Drug-Free Remedies for Chronic Pain

ABC World News NOW’s “Healthy Life”—November 2008
“Dancer’s Career Ended by Chronic Pain”

ABC News—November 2008
“When Your Pain Has No Name”
(For Grace consulted and interviewed for this article)

For Grace’s Women In Pain PSA—June 2008
“Unsung Heroes” (QuickTime video) 

Woman’s Day—March 2007
“My Mystery Disease” by Cynthia Toussaint (.pdf)

New York Times—May 2006
“Doctors Struggle to Treat Mysterious and Unbearable Pain” (.pdf)
(Picked up nationwide)

For Grace’s Reflex Sympathetic Dystrophy
PSA—February 2006

“Putting Out the Fire” (QuickTime video)

Discovery Health Channel’s Mystery Diagnosis
October 2005 - Currently Airing

“Issac’s Nightmare” (QuickTime video)
(Picked-up by The Learning Channel & Home and Health Worldwide)

The Orange County Register—March 2005
Second Chance

Los Angeles Times Op/Ed—January 2004
With Chronic Pain, Discrimination Hurts” by Cynthia Toussaint (MS Word)

The Orange County Register—June 2003
Silenced Screams” (Picked up nationwide)

Testimonials

From For Grace’s Women In Pain Petition

“If I had a nickel for every time I was told the pain was in my head or that I must be stressed or depressed, I would be rich instead of on the verge of losing my house.”
—Deborah Bernardy, #4376

“When suicide becomes a woman’s best option for treating her pain, there is clearly a problem with the system. Chronic pain shouldn’t be fatal!”
—Susan Tagliano, #5360

“I suffer from pain because of a bone desease and can’t get help. I now treat myself with vodka at night before bed.”
—Darlina Anthony, #2854

“My doctor refused to see me because I brought in a book and asked questions.”
—Connie Brown, #2762

“If I am in complete desperate pain, I know not to seek help until I get my emotions under control or I will be told my crying is a symptom of emotional distress, not true physical need.”
—Tristin Belvedere, #2917

“As a nurse and health professional who has suffered with pain for years, I know firsthand women are treated ineffectively, often for their complaints of pain.” 
—Mary Pat Conley, RN, BSN, #938

“I knew an old lady that cried because of the pain she was in. Doctors did not believe her. She committed suicide. Her name was also Betty—and she lived in Queens, NY”
—Betty Fernbacker, #2153

“Because I advocate for myself, I’ve been labeled, dismissed and even told to “get the hell out” by male practitioners. My pain remains untreated and suffering is now my life.”
—Glenda Lee Medira, #6005

“I am a woman dying from a disease that was ‘all in my head.’”
—Debra Van Ness, #952

“There are those who seek to destroy and discredit us. Let them try. They can only make us stronger.”
—Amy Sarandon, #5101

Resources